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Hello all, I hope everyone is doing well. I'm brand new here and just poking around on the internet while I wait for more info and my MRI. I have a lump on my forearm, it's been there years and my doc always told me it was a lipoma. I've got a new doc...
Hi all, i have been diagnosed with stage 3 soft tissue sarcoma and after several months of radiation, i started chemotherapy. I am fairly new to all this and was wondering what chemo you had/having and frequency of it? Thanks everyone
Hi I had surgery to remove a large lump from my thigh muscle about 11 weeks ago. I was told pathology had a backlog so could be a while. I was wondering if anyone else has had this long wait time?
Hi all I am a 47 year old father of four (ages 6 - 12) and was diagnosed with Desmoplastic Small Round Cell Tumour in early January after having scans to determine the source of pain in my abdomen, pelvis and back. Google tells me it is a dire prognosis...
Im still fairly new to this whole online support situation but I got told nearly 3 weeks ago I have cancer, however I didn't have a full diagnosis of what type of cancer I have at the time. Luckily, it was yesterday I properly found out I have soft tissue...
Hi. Not sure what I am doing here. My husband has a dediff liposarcoma of the abdomen. It is a 3 stone mass and fills his entire abdomen . It is due to medical negligence and has been told that he has weeks/ months to live. We have been turned down by...
Hi everyone, My teenage son was diagnosed with MPNST in his sacrum last November and was referred to Birmingham for pelvic surgery. In February they decided it was a benign Schwannoma. Now 12 months later they informed us last week it is actually a...
I found out last week that I have a stupidly ridiculously rare type of sarcoma. Today it seems to be filtering through my head a bit more, and I'm finding all a little overwhelming, so thought I'd come and say hi, how's life treating you today, on here...
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi, I have recently been diagnosed with ewings sarcoma, and I'm finding it extremely hard to cope with the fact that I'm basically going to die at some point, I'm so scared of leaving my family. Does anyone have any ways they could share on how they...
