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Hello. I was diagnosed with a grade 3 uterine sarcoma last November. I’ve had a radical hysterectomy & belt n braces targeted radiation this year. This did fling me straight into menopause. I am very tired all the time & have learnt to rest when I really...
Hello, yesterday my partner of 21 years received a phone call saying the endoscopy and biopsy of his stomach,he had 10 days ago, showed he has a lump in his stomach.The nurse said it was called a GIST about the size of a 10p coin, and it would need to...
Hey My child has had a 2 ww to the royal Marsden sarcoma clinic after, an ultrasound,MRI and then a further MRI with contrast. The report stated a sarcoma, I've googled the life out of sarcomas, and I'm so confused and frightened. Some sites state...
Has anyone had chemoradiation before for a sarcoma? It has been mentioned before to me. How many cycles and is the chemo and the radiotherapy on the same day? I'm such a busy person.
Hi all, I was diagnosed in 2014 with Retroperitoneal Liposarcoma. The Beast as I call it (due to its size) was removed with surgery along with my left kidney and part of my bowel. Then in 2018 I had a reoccurrence, once again it was removed with surgery...
I have a very large right proximal hamstring compartment vascular malformation (a huge lump the size of a small watermelon) at the rear of my right thigh. It has been advised the best course of action is to remove it however there is a small risk due...
Hi I was diagnosed with endometrial sarcoma 2020 just as we went into lock down. I was told it was stage 4 as it had spread in to my vagina hip and lung. I was distraught as you can imagine, I didn’t want to know how long I had but in my head it would...
Hello everyone, I was diagnosed grade 3 uterine cancer last November, radical hysterectomy in Jan, radiation March to April. Had an online “check up” in April. Not had any subsequent contact from medical team. Am still so tired tho. Obvs been flung into...
everyone. I was diagnosed with LGESS earlier this year. Subsequently joints are now aching, from stopping all hrt, no tubes or ovaries either, going for a bone density scan first before being prescribed medication, just wondering if any one has changed...
Hi all, I was diagnosed with leiomyosarcoma in July last year. I had a total hysterectomy including my ovaries and tubes and was staged at 1a grade 2. Ever since my op I have had really bad bowel issues. My oncologist said that I should have further investigations...
