Hi everyone, We’ve launched our annual survey for 2024! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi all, I am new here. I had a tumour removed from my right lung nearly 3 months ago and the pathology report has finally been published. I was told it was a rare form of sarcoma called intimal sarcoma. I looked it up and am confused as I remember the...
Hi All, Original diagnosis of LMS in January 2021, thankfully NCD since. However I have a small lump on my tongue which is being investigated on 3rd January, anyone has LMS in the tongue? (Thankfully the lump in my thigh was just a fatty lump!) Keeping...
I had stage 1b leiomysarcoma diagnosed in June 21.and had a total hysterectomy. In February this year two mets were found in my Iliac artery and one in my pelvis on my psaos muscle. They are inoperable and I've had 3 doses of doxyrubicin. Today I've been...
My 16 year old is nearly finishing his 9 cycles of chemotherapy followed by radiotherapy and another 5 cycles of chemotherapy. He has a choice of taking a 5 weeks break before the next 5 cycles start. My son wants to get over and done with it with no...
Hi, is there anyone out there with radiotherapy induced sarcoma? What was your diagnosis. How has the surgery worked? I had a radical mastectomy yesterday for a stage 2 sarcoma with a fantastic surgeon at The Royal Marsden. I've been advised there...
I'm new here I'm, I'm 24 year old male, just worried about a lump in my thigh. About a year ago I noticed tumour on my outer thigh (left leg). It's hard and doesn't move around when I touch it. now, I started having a pain in that part of my thigh that...
Hi , I am 42 years old woman with 2 children. This year on May I have diagnosed with IVC Leiomyosarcoma which is a very very rare Cancer. After a long waiting, I got a date for the Surgery on 11th of October. My Inferior Vena Cava has been removed...
Hello All, Three and a half years ago I had a below-the-knee amputation as the myxofibrosarcoma in my ankle was inoperable. It has been an amazing journey with the RNOH Satnmore where I had the surgery and everything that followed - physio and prosthetics...
Hi , i have just had my second round doxorubicin to shrink metastatic tumours (5) in liver. I started with retroperitaneal leiomyosarcoma. I have a scan next week to see if any effect. Im 52 yrs old and they just trying to give me abit more time... has...
