I have very recently been diagnosed with DFSP with sarcomateous transformation. I had what was believed to be a large epidermoid cyst removed from my upper back in Nov 25 and didn't hear anymore until a call from Sarcoma team in March 26. This was...
Hi! I want to share my story in the hopes of learning positive stories from others, and potential options. I was diagnosed with myxoid liposarcoma in May 2023, underwent 25 radiation treatments and a resection. Followed by a serious infection, 3 IND...
Hi all, I’m after some advice please? in October I noticed a small (2mm) hard lump in my thigh so I went to the Drs & she wasn’t concerned but said to keep an eye on it. By the end of November it had grown (5mm) & changed shape so I went back again. Still...
Is there anyone out there being currently treated at Derriford in Plymouth? Have an appointment with my surgeon this week to discuss options. Really scared about having more surgery - swore I couldn't go through any more after extensive surgery last...
Hi, I have created this post in part to try to share my own experiences but especially to try to find people who are having similar experiences to me. Brief history: Diagnosis January 2022, of myxoid liposarcoma having found a lump on the side of...
I was updated Friday that this is what is suspected for my soft tissue mass which is 17.5cm by 13.5cm. No update on the mass on my pelvis as this was sent to gynaecology which has since sent back to orthopaedic. Chest xray, CT etc booked in. But if...
Hi My husband goes in to have his sarcoma lump on top of his inside leg in 19 Nov 2025, can anyone help me how long recovery could be? They have to remove a muscle in the top of his leg too, so I am guessing that along with radiotherapy after op there...
hi ive got a sarcoma and had surgery to remove it from my foot. unfortunately it has invaded my blood vessels so it looks like a below knee amputation is required. \I live alone and wonder how i will manage and how long the rehab will take. Im fearful...
Hi I am new to all this and very scared. I've recently been diagnosed with spindle cell sarcoma of the bone. It"s my thigh bone. The sarcoma team hoped to operate and cure with chemo, as they thought it was localised to that bone. Ive just had a CT...
I Found a hard lump in my left thigh around Christmas time. Went to the GP in Feb and she said probably nothing to worry about but referred for an ultrasound scan. Had the scan this week and they sent me straight for an MRI as it was a definite mass around...
