Hi everyone. About 5 weeks ago I started with shoulder pain and then a few days after I noticed a lump on my upper left arm, with no injury. Gp sent me for an x-ray, results have took over 2 weeks and I haven't been told what they are, GP has booked a...
Hi, does anyone have experiences on taking oral vinorelbine on low doses for treatment of desmoid tumor/desmoid fibromatosis? I have been offered this chemo as first treatment to shrink my tumor. Dr said it will be given in low doses so side effects...
Hi all! First time posting here, so apologies if this is the wrong place! My mum was diagnosed with a 28cm GIST tumour, and has been treated with Imanitib for the last few months. She's been on and off it due to various other infections getting in...
Hi there, is anyone taking Cabozantinib? If you are how are you finding it? What is it being used for? All information or advice welcome please x
I am just wondering if anyone else or any parents have had this diagnosis? My daughter is 11 months old but was diagnosed with a soft tissue sarcoma at 9 months. It is behind the left eye so it’s incredibly rare. I am just feeling so lonely as the formal...
Hi everyone After 9 months of tests, I was referred finally to soft tissue specialists who requested a PET CT scan and biopsy with ultrasound. I’ve had a call today from the original hospital who want to see me tomorrow to discuss the Pet scan results...
Hi all, hope everyone is doing ok. I'm currently awaiting an MRI scan for a lump I've had in my index finger for a number of years. I'm completely blindsided to hear that I've been referred to a sarcoma team as nobody has ever mentioned possible cancer...
Please help. 3 weeks ago I noticed a large lump/swelling at the front of my shoulder. I work out at the gym so it was only when I tensed the muscle that I could see the size of it. My ultrasound said there were multiple sacks of fluid in there but they...
Well, we are now on week 6 since finding out my partners tumor is Sarcoma and we still have no contact from any one - we have chased and chased, and have heard nothing from them bar - they advise that they are waiting for further histology! Its such...
Hello all, Can anyone tell me, once the sample has been allocated to a Sarcoma pahologist, how long it takes usually for results in reality? We have been told it can take up to 6 weeks - but have already waited 9, surely that cannot be correct!
