Spindle cell sarcoma has spread

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Hi

I am new to all this and very scared. I've recently been diagnosed with spindle cell sarcoma of the bone. It"s my thigh bone. The sarcoma team hoped to operate and cure with chemo, as they thought it was localised to that bone. Ive just had a CT scan back and I have two new masses near the aorta artery. Ive been told we can only treat and manage the cancer now. Does anyone else have any experience of this and what to expect? 

Its completely pulled the rug out from under me. I can't stop cryjng and worrying. Any advice appreciated. Thank you