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Hi everyone. Just popping in to say hi. All my info and journey is in my profile but briefly - appendix tumour (accidentally found) August, right hemicolectomy October and now starting chemotherapy on 5th December. Scary news but swiftly tackled by my...
Hello all, I joined in 2020 after being diagnosed with a tumour on my appendix but did not post as within 3 weeks i had an outcome that changed things. after 2 weeks going to work in pain especially when getting out of my car & work van i went to...
Hello, Only just joined the group this evening. I had appendicitis back in march that turned out to be a LAMN (after being diagnosed by Basingstoke). A CT scan and colonoscopy later I've been told that I'll have a checkup every 12 months (Just...
I had some unexpected news a couple of days ago from my consultant. the latest CT scan is showing some reoccurrence of my PMP despite me undergoing CRS/HIPEC on 21-Feb-2022 , when I was diagnosed with LAMN. full diagnosis on latest clinic letter is...
Hi all, after having my appendix out in May I was told I had a 7.5cm cancer of my appendix. It's 9 weeks on Wednesday and I will get to see my surgeon on Wednesday. As much as I know it's aggressive and I have been referred to my specialist centre Basingstoke...
Hello, I don't actually know how to feel about the information I got. I know I'm very lucky. I had my appendix removed a couple of months ago and I got a call today to say that they had found a NET that was below stage 1 and hadn't spread. It was...
Hi to all. Recently been diagnosed after initially being told I may have pmp at the end of June last year( won't bore you with the details but my local hospital dropped the ball in a big way). Anywho, diagnosed beginning of Feb this year, met with consultant...
Hello I have been diagnosed with pmp low grade and high grade. I recently had debulking surgery and Hippic.. Surgery and post operative recovery went well and I am being referred to an oncologist for chemo t reduce the risk of recurrence....
Hi everyone, We’ve launched our annual survey for 2024! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi Everyone I was diagnosed with Pseudomyxoma Peritoneii in March 2022. Fortunately, I was able to have cytoreductive surgery (CRS) and hyperthermic intraperitoneal chemotherapy (HIPEC) - MOAS - “Mother Of All Surgeries". My surgery took place at...
