Hi , I’m not sure if I belong in this group but they did put a leaflet in my pre -op pack , also referred by Sarah. I had an appendectomy mid June ( appendix had burst and create an abscess) . i was told on 3/7 it was cancerous and i would be referred...
Hi, I'm Alex, I was diagnosed with an appendix tumor in July, after a ct done by haematology for a different condition. I can't find anyone like me - I know this is a quite rare thing to have, but also I am already disabled - I'm a wheelchair user &...
I’m 59-year-old and have recently had a ruptured LAMN discovered unexpectedly after emergency surgery abroad. Tumour 15 × 5 × 3.5 cm. Histology showed low-grade appendiceal mucinous neoplasm with acellular mucin involving the visceral peritoneum. Margins...
Hi everyone. reaching out as I really need some support. i was initially diagnosed with appendix cancer in 2016. I went 9 years without any reoccurrence but last year was diagnosed with Pseudomyxoma. Had surgery in Basingstoke which included a full...
Hi, I’m new here but I was diagnosed two years ago (appendix mass removed in 2015) and have been on watch and wait since. The more I learn about the treatment ahead of me the less I want it. Am I being selfish?
My partner has just been diagnosed with suspected appendiceal mucinous tumour with concern for PMP(appendix cancer) and is awaiting cytoreductive surgery and HIPEC at Christie’s hospital. It’s only been two weeks and the surgery is planned for the end...
Hello, I am just joining today after my recent diagnosis. I am awaiting a referral to The Christie in Manchester and have only had one appointment post op in which I was told I had cancer. The wait is driving me mad with worry as I am suffering extreme...
Does anyone have any experiences of this, advice or guidance. I'm really worried about the future. I'm a 40 year old mum of a 5 year old and i had my appendix removed in December. Follow up revealed goblet cell adenocarcinoma and now I'm having preventative...
I had CRS and HIPEC in Basingstoke 9 weeks ago. This last week or two I have had backache which is pretty much constant but worse when standing. Has anyone else had this? Did it go or do I need to speak to my gp about some physio maybe? Or am I expecting...
Hi everyone, just wanted to give an update on chemo treatment. I will be having 4 cycles of XELOX which is given as IV followed by 14 days of tablets. During the IV yesterday the first hour was okay and then started to get tingling and numbness in hand...
