Hello all,
I joined in 2020 after being diagnosed with a tumour on my appendix but did not post as within 3 weeks i had an outcome that changed things.
after 2 weeks going to work in pain especially when getting out of my car & work van i went to the local a&e. i was seen & told to go straight to the main hospital in our area with a letter saying suspected appendix problem
Upon arrival (4pm fri) i was looked at then waited to go for a scan 9.30pm came & i was sent home as scanner had emergency coming in & closed at 10pm to non urgent cases,i was given an appointment for sat 12.00 lunchtime.i returned the next day had scan then given a gown & socks told to change for surgery,waited until 5pm then sent to a ward as an emergency had come in,11am sunday i had the op,(told around an hour & half) woke up in recovery 4pm,taken to ward told a tumour found on appendix that had ruptured & mucin like fliud on lining of stomach in that area,tumour & appendix removed & some of bowel trimmed & cuffed to be on safe side.monday am brought surgeon & training doctors to my bedside to explain all about psuedomyoxoma peritonei & my appendix was going to Basingstoke for biopsy & opinion of prof carr,i was sent home next day to recover,recieved a call from a nurse saying she was appointed to my case to look after me & asked if Basinstoke or christie manchester was better option for my wife to visit me /find accomodation/relatives.2 weeks after op i recieved report from prof carr saying mucin like fluid & tumour showing signs of being non cancerous at that time.so on with life i go,few visits to doctor & specialist with stomach problems (pain),but told would pass with time.
Now 2024 ive been to my GP couple times in past 2 weeks with symptoms that something is going on inside stomach area, im now waiting to see a specialist under the 2 week appointment system,i would be so greatful if anyone reading this would reply if you had an appendix tumour that was removed,given an all clear then further down the line you had problems that turned out to be pmp & the symptoms you experienced, many thanks .
I would suggest you get in touch with Basingstoke as you will still be on their radar I hope and they are the experts in this area so even if you seen in the next couple of weeks, if it as your local hospital. It's unlikely to have a specialist on the tram
Also would recommend you join and post your question on the above private FB Group. Loads of experienced members with lots of knowledge and UK based with lots of Amazingstoke patients.
I am a Christie patient.
