Mucinous adenocarcinoma with signet ring cells appendix tumour

Hi....I am a Christie patient.   Have you been referred to them or Basingstoke as I believe these are the only centres for specialists for our cancer.  I have had five cycles of FOLFOX and 15 cycles of FOLFIRI ( both IV).   I have not heard of capecitabine being used for our cancer.

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Hi TG10M. I haven't been referred to either as my surgeon and oncologist said that the tumour was contained in the appendix and now they have taken the right part of the colon and 10cms from the o side without anything on CT, colonoscopy or lymph nodes. So, I think they're doing the chemotherapy as a prevention measure. My oncologist is affiliated with Oxford and has a long,  great reputatso I don't doubt her judgement. Thank you for your message though. I hope they're right

Hi I started on capecitabin tablets alongside oxaliplatin (referred to as CAPOX), but had to stop after two cycles because the side effects were too much. I then switched to FOLFOX which I was able to tolerate better although I disliked having to 

…use the bottle rather than tablets. FOLFOX is folinic acid, fluorouracil and oxaliplatin. These were administered at my local Trust, however I was referred to Basingstoke for cytoreduction surgery and HIPEC. As another poster says, there are only two hospitals of expertise for our type of cancer. Unfortunately CT scans and blood tests don’t always pick up anything untoward in terms of spread. The optimum treatment remains cytoreduction surgery and HIPEC.

Thank you for your reply. I was happy with the diagnosis and outcome but now feeling very worried about not being referred to Basingstoke (my nearest). I did ask if there was anyone else or anything else I should/could do and was told no. Now I'm worried 

Oh gosh I didn’t mean to worry you. There’s a lot to learn about PMP and appendix cancers and we all have different experiences. I’m a few years down the road from a stage IV diagnosis and was referred immediately (see bio). Your diagnosis will be different, but it would do no harm to ask questions and if a referral to either centre could be arranged for you.

Thank you. I've put it on my list to mention when I speak to my consultant next and I will also query it with the nurse practitioner. Thank you 

Hi, I had CRS/HIPEC in Basingstoke for Mucinous adenocarcinoma in June. My tumor was 30cmx30cm so had a fair few organs removed that it had attached itself too. It was found after after an MRI to find out why my Diverticulitis abscess continued to grow. I have no idea how long it had been growing. I started adjuvant chemo end of Sept. I've just come to the end my third cycle 8 on 2300mg of Capecitabine (tablets only, no infusion). I was scared of the side effects but so far so good. I take anti- sickness half hour before them as a precaution (sickness and nausea were my main concern), I keep my hands and feet moisturised to avoid cracking skin (udderly smooth is great), I have a colostomy which some days is more affected then others. Some days I have an odd taste in my mouth but it passes My sofa naps have increased but not everyday. They did provided me with a painkiller mouth wash and loperimide to help with side effects if I had them. For me I found reading how others coped with side effects helped me prepare for what 'may' come (I did the same for surgery - it helps me prepare myself). Everyone is different. Good Luck. Your team are there to help and support you though your treatment, ask any question you have (I wanted to know if I could still get a pedicure ha) 

Thank you so much for the reply. It was comforting to read. Glad to hear that you have had few side effects and are coping with the treatment. Best wishes to you