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Hi guys Just a quick question . I recently had a heart scan and while the heart is good and all ok, they did notice that there was a nodule of 1.3cm in the upper part of the spleen. I have splenic marginal zone lymphoma, so I guess I'm alittle thrown...
Hello everyone, I was diagnosed with Stage 3 Follicular NHL, nodes everywhere and spleen. I only finished a year’s cancer treatment for aggressive breast cancer 3yrs previously. I’m symptomatic so had Rituximab over Xmas and NY. Repeat PET CT CMR, but...
Morning all. Hope this finds you in good form. I have been in remission for 2 years now, and I am only now experiencing some feelings of fear regarding what happened. I wont go into detail but 2023 was an extremely hard year. I have fatigue issues...
Hello everyone, I don't want to sound negative but I'm now 4 Years after treatment and recently after a CT scan discovered I have a small brain injury from being in a induced coma back in 2021, it's becoming a worry because I have done things in the last...
Hi. In May I had radiotherapy for Non-Hodgkinson Lyphoma in my upper chest / kneck area. Unfortunately it destroyed my saliva glands, and negatively affected my tastebuds, and left me with a costant dry mouth. For the past 25 weeks I have not been able...
Hi all I have smzl an allergic to rituximab and so am unable to have any treatment that includes it. Was recently on zanubrutinib but it's caused so much bruising and also anemia so just been taken off that. My consultant is now sending me for Bendamustine...
Hi guys It's been awhile since I was last on here. Had my last treatment September 2023 and things had been going well til the summer this year. I've basically had infection after Infection with a very low immune system at 6.5, I have to be below...
Hi, I have had four rounds of R-CHOP for transformative high grade lymphoma DBCL in the sternum area. This follows radiotherapy in March when it was low grade. ( I previously had radiotherapy in 2019 and 2021 for low grade in neck area.) I have struggled...
I am a new member to the group, I was diagnosed with Splenic Marginal Zone Lymphoma in January this year.
I was diagnosed with HIV in 2003, then in 2004 with NON-HODGKINS LYMPHOMA. During treatment for the cancer I at one stage was given VINCRISTINE. My recollection may be wrong but having been given the Vincristine that same day or very soon after I experienced...
