I am new to the group. Was diagnosed with Splenic marginal zone lymphoma on 8th January.

Hi Lyneal and a warm welcome to this corner of the Community although I am sorry to see you joining us and to hear about your diagnosis.

I am Mike and I help out around our various Lymphoma groups. I don’t have SMZL ( What is MALT lymphoma?) but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma) ……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting so although my Lymphoma ‘type’ is different I most definitely appreciate the challenges of this journey rather well.

Where are in the process with regards to treatment?

Always around to help out ((hugs))

Hi Mike, sorry to hear about your journey. I have had four treatments up to now, my next one is on 23rd April.  Splenic marginal zone lymphoma is incurable but can be kept under control, my,last treatment will be on 8th of October.  It was a shock at first  but I knew something was wrong from the night sweats and size of spleen also massive weight loss. Thank you for responding. 

Hi again Lyneal my first type of T-Cell NHL that was diagnosed in 1999 is also seen as incurable…… and for the first 17 years of my journey I was only ever in partial remission the longest was 9 months before going back on treatments… but my last treatment was back in Oct 2015 then in Sep 2016 I was told I was in Remission and NED (No Evident Disease) for the first time in over 17 years…… so when it comes to Lymphoma there is always hope (See my full story)

When I was first diagnosed our daughters were 14 and 18……but we went on to see our daughters graduate, get married, set up very successful businesses and provide us with 4 beautiful granddaughters….. I turn 70 at the end of this year.

I am living a great life and we continue to look forward to what else life has in store for us to enjoy…….. this can be done.