Hi guys I have relapsed again and I will need to start treatment soon! My second lot of treatment of Rituximab and Bendamustine finished September 2023. I'm alittle sadden that I have relapsed so soon I guess I was hoping for longer before I would...
Hi from across the pond (Boston USA area).... Searched around, dunno if there is already a more specific forum or place where some of this already answered? ½-way thru tx--GI problems (bloating/fullness especially 1st week of cycle; and fatigue on...
Hi, I have just had a scan for suspected early relapse of high grade non-hodgkins lymphoma. in sternum(transformed from low-grade treated with radiotherapy March last year) finished R-CHOP chemo in December, get results on Tuesday. I previously had...
Alternative ideas to changing your bedding in the middle of the night. All the information I've seen on websites suggests changing your bedding when it becomes soaked with sweat but this isn't always convenient when you share a bed. My solution is...
Hi all following on from my initial post. I have gastric malt lymphoma (which didn't clear after treatment of h pylori) its all been a bit ongoing since last November (initial diagnosis of h pylori and lymphoma) have recently had a bone marrow biopsy...
Hi all, my consultant was originally going to give me 4 treatments of rituximab. I have low-grade gastric malt lymphoma that came from h pylori. As all my blood tests are fine and I have zero symptoms (have had antibiotics to clear the h pylori and...
Hello, I have nlphl which is a rare subtype that is HL by name but NHL by nature. It messed me up pretty bad in 2024 with constant infections and trips to hospital with no doctor really knowing what was wrong with me because my diagnostics took ages...
Good morning I have just joined, long story short, I was diagnosed last November with gastric malt lymphoma, this was as a result of h pylori. H. pylori was treated with a course of antibiotics over 10 days last November. I then had a follow-up...
Hello, I’m half way through my 3rd (of 6) cycles of Pola-R-CHP and am just coming out of what I can only describe as a mental nosedive and wanted to know if anyone else has had a similar experience? Up until now I’ve been managing my treatment fairly...
Hi guys Just a quick question . I recently had a heart scan and while the heart is good and all ok, they did notice that there was a nodule of 1.3cm in the upper part of the spleen. I have splenic marginal zone lymphoma, so I guess I'm alittle thrown...
