Complications

Hi  Adam and a warm welcome to this corner of the Community although I am sorry to jear about your post treatment challenges

I am Mike and I help out around our various Lymphoma groups. 

I was officially diagnosed way back in 1999 at 44…… with with my rare (8 in a million) incurable but treatable type of Skin (Cutaneous) T-Cell Lymphoma (a type of slow growing Low-grade non-Hodgkin lymphoma

I eventually reached Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-cell lymphoma not otherwise specified (PTCL-NOS)…… fast growing High-grade non-Hodgkin lymphoma) was then presenting so although my Lymphoma ‘type’ may be different I most definitely appreciate the challenges of this journey rather well.

Post treatment health issues is unfortunately not that unusual…… the body and immune system goes through a lot……. in my case my final treatment in Oct 2015….. (a second Allograft (donor) Stem Cell Transplant developed A-Fib so heart issues were lingering culminating in a full blown Heart-Attack in April 2022.

Heart is ok now……. But during my Stem Cell Transplant I also developed a massive Hiatus Hernia…… it’s so big that it actually fully encloses around my stomach and pancreas gland but I am very thankful that I don’t have any problems with as it would be very dangerous to operate on……

In these situations all you can do is trust in your team and let’s look for a good outcome for you.

Always around to chat..

Hi Mike and thank you for your reply, sounds like you had a rough time with lymphoma, mine was in my voice box and had a operation since to have a silicone implant so I can talk and swallow but I'm alive and optimistic 

Hello, Adam. Sorry to hear of all this. As to memory and cognitive issues, the stress of the diagnosis can have as much negative impact as the therapy itself - perhaps more, as the stress and coping will remain after treatment has been completed. So-called "chemo-brain" is a genuine concern for those who were not subject to a medically induced coma. It will be helpful to know if the damaged area is associated with cognition, or some other function.

We are resilient, adaptable creatures and methods may be engaged in which will help recover, or avoid lapses in memory. There are always more questions than answers, but hope does not disappoint. Here is hoping that you receive some illumination and make strides in recovery.