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Has anyone experience of travelling to a malaria zone with lymphoma? I am waiting to see the travel nurse for suitable anti-malaria tablets, but those I have read about so far have cautions about effects on red and white blood cells.
Hi all I was diagnosed with SMZL back in November 2025 and following my first chemo session in December ended up in hospital over Christmas after contracting neutropenia sepsis. Ever since I have worn a mask everywhere I go and use hand sanitizer whenever...
I have heard that papaya is effective in raising platelet levels, mine are very low. Does anyone know if papaya is effective, how is it used, the fresh fruit, dried fruit, drinks or dried leaf preparations? Are there side effects to beware, I have been...
Hi. I'm new to the group and am looking forward to hearing about how people cope with their diagnosis and carry on with their everyday life without letting the diagnosis take over.
Hi all, . I've been suspected low grade nhl since January 2023. I've been on watch and wait but no formal diagnosis, because the enlarged lymph node were in retroperitoneal and mesentry. All been static for 3 years, but recently I've been having stomach...
Hello, I’m half way through my 3rd (of 6) cycles of Pola-R-CHP and am just coming out of what I can only describe as a mental nosedive and wanted to know if anyone else has had a similar experience? Up until now I’ve been managing my treatment fairly...
Hello, I have recently been diagnosed with Waldenstrom's and noticed that there arent many on this forum with it, so wanted to contribute my story and support. It was a bit of a shock to be diagnosed under 50, and it came about through lack of energy...
Happy New Year everyone! I hope everyone had the best Christmas and NY that they could possibly have! I've started mine with yet another Infection, bloods are all low. I have been on preventive antibiotics since the end if September and this is my...
Hi I’m new to this group and would be grateful if anyone has any advice to share about a similar experience to me. I was treated for a Brain Tumour in 2024, finishing Chemo and Radiotherapy in November 2024. My appointment in April 2025 it showed the...
Hi everyone I hope your well & fighting on :) My name is Gray I'm 21 years after aggressive lymphoma treatment. In 2004 (age 23) I had: Diffuse Large B-Cell s tage 3 high grade Non Hodgkin's lymphoma 8 cycles CHOP 3 cycles ESHAP salvage High-dose...
