I have NHL T cell after my last infusion of chop which is my 4th now I was terribly sick even though I took ondensatron too. Also my large colon in which I have colonic diverticular seems like it's on fire and I'm in pain just wondered if anybody else...
I have no hair left just a few sprigs now ! My scalp it's been sore it looks like I have what babies have called cradle cap ! I do have a special shampoo and conditioner it's helping ,but I wondered if anybody else used something I can put on it please...
Hi just joined i finished my treatment for non hodgkins lymphoma 6 weeks ago had my pet scan 5 days ago and got my appointment with consultant tomorrow just wonderd anyone else going through same im stage 4 thanks
Hi all I have smzl and have my last chemo/antibody treatment next month. I booked a caravan holiday literally a month before being diagnosed and I’m due to go on my holiday about three days after my last chemo I’ve been coping really well throughout...
Hello everyone, Apologies if this is in the wrong page, I was looking for something around symptoms. I'm recently diagnosed with Follicular Lymphoma. I'm getting a constant runny nose which I've had for almost a year now, without finding out the root...
Has anyone experience of travelling to a malaria zone with lymphoma? I am waiting to see the travel nurse for suitable anti-malaria tablets, but those I have read about so far have cautions about effects on red and white blood cells.
Hi all I was diagnosed with SMZL back in November 2025 and following my first chemo session in December ended up in hospital over Christmas after contracting neutropenia sepsis. Ever since I have worn a mask everywhere I go and use hand sanitizer whenever...
I have heard that papaya is effective in raising platelet levels, mine are very low. Does anyone know if papaya is effective, how is it used, the fresh fruit, dried fruit, drinks or dried leaf preparations? Are there side effects to beware, I have been...
Hi I’m new to this group and would be grateful if anyone has any advice to share about a similar experience to me. I was treated for a Brain Tumour in 2024, finishing Chemo and Radiotherapy in November 2024. My appointment in April 2025 it showed the...
Hello everyone, I was diagnosed with Stage 3 Follicular NHL, nodes everywhere and spleen. I only finished a year’s cancer treatment for aggressive breast cancer 3yrs previously. I’m symptomatic so had Rituximab over Xmas and NY. Repeat PET CT CMR, but...
