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Hi, I was diagnosed few months ago with SMZL, have had 6 rounds of chemo, which hasn't shrunk the spleen any noticeable amount. Therefore I am having my spleen removed this coming week. Has anyone else had their spleen removed? and if so, how did things...
Hi peeps. I was diagnosed in March this year after an open biopsy on my neck. DRC treatment started 3 months later but I suffered with bad reactions so treatment stopped and changed to immune therapy rather than chemo and so far no sickness or any of...
My husband has recently been diagnosed with Non-Hodgkin lymphoma. We are still awaiting haematology appointment. the lump in his neck has rapidly increased in size and is putting terrible pressure on his throat. He’s dosed up on painkillers but I wondered...
I successfully achieved remission from my stage 4 lymphoma last October. Since then, I've been keeping my hair short, but recently, in the past month (after 9 months), I decided to let it grow out. However, I've noticed that it's not growing as thick...
Hey lovelies. hope you are all surviving. my partner was diagnosed again with non Hodgkin’s again (he had it a few years ago but after 6 rounds of chemo he hit remission) but it’s back again now and we’re currently awaiting a stem cell. He’s so laid...
Well it’s happened 2 days before my second RChop my hair was literally jumping out of my head. Took the plunge and had it shaved and feel better for it. Intend to wear big earrings, bright lipstick and loud scarves
Hello. 10 days ago my daughter was diagnosed with Non Hodgkin Lymphoma. No words. Except sadness and shock and anger
Hello I’m new here. I was diagnosed July 2020 stage 4 and needed chemo right away. It’s been a whirl wind but hanging on in there. Emotionally I struggle and have just been given 18 months maintenance chemo that I didn’t need. They mixed up my condition...
Hi, I Have recently been diagnosed with stage 4 non-hodgkin lymphoma. I initially had severe pain in my left leg which the GP, physiotherapist and osteopath all said was sciatica. I knew it wasn’t sciatica and kept pushing the GP for a scan. After...
Hi All. I was diagnosed with low grade Extra marginal low grade NHL in May. I have it in both lungs and have had 4 cycles of Rituximab monotherapy. I only achieved partial response. Due to problems with my heart consultant is not too keen to move to bendamustine...
