Hello

I am so sorry this happened, you must be angry.

My husband has had two episodes that needn't have happened and almost blead to death in front of my eyes because of internal bleeding post op, It's the fact that they won't listen when you point out the obvious that gets me. It seems that once they decide something, they can't see past it, even if there are obvious pointers to reaching the right conclusion.

18 months on chemo for nothing: what can I say?

I gave my husband the  last injection of his last chemo session yesterday and last night was the first time in 12 months that I've slept through the night. In the future, when I wake up at 3am I'll think of you and all the other worried and angry people, because we have enough worry with this without the added incompetence.

Hi Rita789 and a warm welcome to this corner of the Community although I am always sorry to see you joining us and to hear about your journey.

I am Mike and I help out around our various Lymphoma groups. I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable type of Low-grade non-Hodgkin lymphoma (CTCL) eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ may be different I do appreciate the challenges of this journey rather well.

What exact type if Non Hodgkin’s Lymphoma (NHL) do you have?…….

Lymphoma in general can be very complicated to both diagnosis and treat. it took over a year and 6 biopsies to eventually identify my very rare type of Lymphoma.

Due to the complexities of treating Lymphomas and the extensive range of treatment available, your experience is unfortunately not that unusual, especially with some of the rarer types of Lymphoma as there are over 60 types of Lymphoma!!!

At one point a small technical error in one of my treatments resulted in me having 2nd degree burns!! (I have a skin NHL)

The most important question is how are you now and how is your Lymphoma at the moment?