Hi All. I was diagnosed with low grade Extra marginal low grade NHL in May. I have it in both lungs and have had 4 cycles of Rituximab monotherapy. I only achieved partial response. Due to problems with my heart consultant is not too keen to move to bendamustine and Rituximab treatment. Instead he suggests 4 cycles of Rituximab as maintenance over the next 8 months. Has anybody had 4 cycles of Rituximab over 4 weeks, then a further 4 cycles on a weekly basis rather than every two months?
many thanks
Clive
Hi Clive Celtic Prof and a warm welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups.
I don’t have Extranodal marginal zone lymphoma (also called MALT lymphoma) but I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable other type of Low-grade non-Hodgkin lymphoma eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ is different I do appreciate the challenges of this journey rather well.
My treatment journey is rather different and I have never had any maintenance treatments as I had to go straight to Allo (donour) Stem Cell Transplant.
But I have had a shed load of Rituxitmab (over 550hrs over 3 months) as part of my main R-EPOCH. My chemo along with the Ritux was very strong and on the wloe I had no real issues. The ritux is a targeted (biological) therapy so tend to be kinder on you.
But let's look for any of the group members who have had Ritux maintenance to pick up on your post.
Always around to help more or just to chat
