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Hello everyone, I came on the group to find a little more information and to try to help me process what I've been told. Yesterday, after my daughter had her appendix out 2 weeks ago, I was told they found NET. They said they are pretty sure that it would...
Hi all, I’m new to this forum. I was diagnosed in July 2024 with NET tumours in my lungs and later in the year found another in my pancreas. I have had good medical support and two weeks ago had treatment on the tumour on my left long and will be having...
Hi everyone I am an 8 year Net survivor having had partial then full Pancreatectomy. Good days mostly but some tough ones too but would love to connect and help others as well as learn from others experience.
Hi al. I had emergancy surgury to remove a tumor which had ruptured on my large intestine. I had no symptoms before this - went to urgent care expecting pain killers - instead got open surgery! The biopsi has now been done and diagnosed with a Net that...
Waiting in Elizabeth Loury ward in quiet room. Have to have 1st cycle in ward the rest will be in Chemotherapy unit. Anxious today. 1st chemotherapy cycle 5 to go. Had all my scans last week waiting on results. 6 weeks post surgery of Radical hysterectomy...
Hi all So I've been unwell with chest pain since December finally had an xray in Feb then various scans etc to now be waiting for surgery to remove what they now believe is a lung carcinoid. All the way along the consultant was confident it was at...
I have just been diagnosed with neuroendocrine stomach cancer last week and received i fo through the post which says that there are normally more than one tumour at the same time, is this correct and if so would it be localised to the same organ? Found...
Hi all I’ve recently been diagnosed with NETS, I had it in my left lung 2018. unfortunately I had to have my lung removed. Now it’s it’s returned AGAIN! the past four years have been such a struggle This time I’m having a different sort of treatment...
Good morning recently I have been diagnosed with colon cancer in the cecum. I am fortunate it has not spread so its localised to that area. I am 74 years old wi have surgery to remove so they are doing a right hemicolectomy in 2 weeks. I have...
