Hello everyone, I came on the group to find a little more information and to try to help me process what I've been told. Yesterday, after my daughter had her appendix out 2 weeks ago, I was told they found NET. They said they are pretty sure that it would have all been removed within the appendix however will let me know after MDT meeting. She has to do a urine collection and blood test and because of her age (13) they may possibly do a body scan. Anybody had an experience like this and can offer any information would be greatly appreciated. They said this is very common however statistics suggest its rare, aswell as the leaflet I was given.
Hi Kaylay
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your daughter's diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
