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Hi my husband was diagnosed with NET cancer in stomach in November 23. We have been patient with the hospitals and Drs, did. The additional tests they wanted, and one which required my husband to come off his omoprzole for 2 weeks which end with him...
Hi everyone I was diagnosed with neuroendocrine cancer in February 21 after the removal of my gallbladder in December 2020 , it was a shock at 1st! I didn't know what was going on? had scan and was about to have the dreaded camera up and down if you know...
My husband 54 has just been diagnosed with grade 2 Neuroendocrine cancer. He had emergency small intestine resection surgery on May 14th to remove a 4cm tumour blocking the small intestine. it has spread to liver & small signs in stomach. treatment starts...
Hi! I am terrified of my newly diagnosed cancer. I am 23 years old and just graduated college. I found out I had cancer after being admitted to the hospital with a HGb of 5.8. The doctors found my 3.4mm tumor during endoscopy and CT showed that my lymph...
Hello! Just got in here looking for a ray of hope for my 70yo father. He was first diagnosed with a 5cm pancreatic tail tumor in march 2023 on a regular CT scan, after having stage 1 colon cancer. In November 2023 the tumor had grown to 7.5 cm and spread...
My husband has a net tumour in the pancreas. Diagnosed 15 months ago after scan for something else. No symptoms but he isn't coping with it. He has hormone injection and regular scans revealing no spread or growth. But he isn't eating due to anxiety but...
Hello, I am new here but not new to having NETs. I have almost 30 years of pheochromocytomas and have been under annual surveillance since 1995. Episodes seem to occur around every 10 years with my most recent surgical removal in 2015. My surgeon took...
Does anyone else have this,or know of someone who has? I am recently diagnosed and starting chemo next week. I am trying to find out where it might spread first,though I realise we are all different. I'm honestly wondering if the "cure" might be worse...
Hi everyone I’ve got Nets and I’m struggling to get holiday insurance at a reasonable price. Anyone got any suggestions please. stay strong guys. Spotter.
Hi all ,I was diagnosed with a net tumour in November, which had also spread to my liver and spleen,I’m having regular monthly injections and scans, it changes your whole life, they only found mine, after investigating an enlarged spleen after falling...
