Hello I have been diagnosed with NETs and am struggling to come terms with it

Hi Vegan Warrior and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I'm not a member of this forum but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Hi many thanks for your reply and support.

Hi it can be a lot to take in at first. I was diagnosed with a pheochromocytoma in 2017. It's rare but there are a few Facebook groups which are really helpful x

Hi and thank you for your response..I know I will get there is still early days.

I wish you all the best

Hi Vegan Warrior,

I hope the last few weeks have seen the sands settle a little for you. It really is a lot to take in. Firstly that it’s cancer, but then that it’s a really different type of cancer that operates in a usual way! So it was take time to understand what it is, as well as how the treatments work as often the treatments for NETs are not the ‘traditional’ ones we all know eg chemo. 

Has your NET/NETs been staged and graded? How are you doing now?