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Hello all Thought I'd share my story, I've condensed the time lime to make it more readable! So historically I have always been fit & healthy and no major health issues, I have just turned 56. 3 years ago (roughly) just had...
I have pancreatic/ liver neuroendocrine cancer or at least I did before my whipple procedure. I guess that is the problem really. Having had the operation the surgeons told me that they got all the cancer. I recently had my follow up CT scan about 4 weeks...
My Dad was diagnosed with stage 4 prostate cancer back in December 2025 following an MRI. He had all of his results (MRI,CT, Biopsy + PET) on 28 April 2026 and the prognosis was 5-7 years because his Gleason score is 9 and the cancer was confirmed to...
Hi all last year on my routine scans it was picked up 3 of my nodules had grew and looking suspicious. So I had biopsy on my top left one it came back carcinoid cancer. They then tried to biopsy top right unsuccessful.so it was decided to remove top right...
Hi, Just wondering if anyone is out there that could help me? or may be or have been in a similar position. I was diagnosed with a duodenal NET in December 2017. Since then I had Whipple surgery and the tumour removed successfully. My malignant tumour...
Have been struggling for a long time now. Finally got response from CNS nurse, which led to phone appointment with consultant, then ct scan and some other tests. Ct scan showed possible blockage and increased uptake in peritoneal. I'm now awaiting a date...
Hi, I'm new to this forum. I was diagnosed with a neuroendocrine tumour in the small intestine, metastases in my liver. Stage 4, terminal. 18 months ago. I'm on 4 weekly oral chemo of capecitabine and temozolomide, with additional 4 weekly injection of...
Hi, I'm 2 weeks into taking lenvatinib alongside 3 weekly pembrolizumab infusions, I was wondering whether anyone else has been on these drugs and how long side effects lasted? I've had high blood pressure, headaches, fatigue and muscle and joint pain...
Hi everyone has anyone else had a TAE procedure I’ve had mine back in June just wondering if anyone else has??
I’m due to have a gallium scan two days after a liver biopsy, has anyone else had these two procedures done so close to each other?
