Have been struggling for a long time now. Finally got response from CNS nurse, which led to phone appointment with consultant, then ct scan and some other tests. Ct scan showed possible blockage and increased uptake in peritoneal. I'm now awaiting a date for an urgent mri as advised by consultant straight after mdt on Thursday. No date as yet. I just want to know state of play. It's like being a chess piece - I don't decide if/when I move, it's all in someone else's hands.
