Have been struggling for a long time now. Finally got response from CNS nurse, which led to phone appointment with consultant, then ct scan and some other tests. Ct scan showed possible blockage and increased uptake in peritoneal. I'm now awaiting a date for an urgent mri as advised by consultant straight after mdt on Thursday. No date as yet. I just want to know state of play. It's like being a chess piece - I don't decide if/when I move, it's all in someone else's hands.
Hello Bailey24
I am Brian, one of the Community Champions here on the Online Community. I have just noticed your post has gone unanswered. I can't answer it myself as I have a different cancer, however by me replying, your post will be "bumped up" to the top of the page and I hope seen and replied to by other members of the Neuroedocrine group.
I am sure once you get a date for your MRI and you have had the scan things will become much clearer.
Best wishes - Brian.
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