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Hi thankyou for allowing me in this group! I care for my dad, whos 77. March got diagnosed with small cell neuroendocrine cancer stage 4, originally in throat now has metasised to liver. Hes doing ok atm but all treatment has stopped. Anyone else dealt...
Hi i had surgery in September to remove a Typical Neuroendocrine Carcinoid Tumour from my Right Lung. I was told surgery was successful and the Tumour was removed. Clear margins and no lymph gland involvement. My nerve pain is still very sore from...
Hi all, after just under 6 months, i am finally getting my surgery. My MRI was rushed through, which i had last monday. On thursday, i had a phone call to book my pre-op. I had that on friday. Was amazed how thorough they were. I came home with bodywash...
I have been told today I have a 38mm NET tumour which has spread to surrounding lymph nodes and to four places in liver. This was an incidental finding and I’m so shocked as I don’t have any symptoms and feel fine. I’m being transferred from the hospital...
Good morning this is going to be like something out of a novel but I’m absolutely petrified at the moment but here goes. around 2 and a half years ago I began experiencing excessive sweating, flushed face, nausea and an urgent need to open my bowels...
Hi, I was diagnosed with a neuroendocrine tumour in my gallbladder in December 2025. I believed I only had gallstones so it was a huge shock. I had to have numerous scans, a laparoscopy, surgery and now undergoing adjuvant chemotherapy. Cisplatin and...
Hi all, my latest drama while still waiting for surgery. I had the dota scan on 30th july, so am waiting for pre-op then surgery. I have now been told the specialist centre in Birmingham want me to have an mri on my liver and a ultrasound scan on my thyroid...
Hi all, The urge to apologise for all the waffle I am about to spew is strong but I have read a few threads already and know everyone is very understanding and supportive. I have had tummy problems for a very, very long time and was always blown...
I had lobectomy to remove nurendocrine carcinoid Tumour removed last September. Surgery was successful. But Im always sweating . I can be sitting then all of a sudden im soaking. Anyone else have this problem?
Hi, ive only just joined, I've been diagnosed with a carcenoid tumour on my right lung. Ive been told its 2.5cm stage 1 and in one lymph gland. Im waiting for an appointment for my pre-op, then the operation. They wont know whether will be keyhole, robotics...
