Neuroendocrine cancerous liver lesions

Hi Sophiemay and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I have no experience with the type of cancer that you've been diagnosed with but I do know what a scary time it is waiting to find out what your treatment plan is.

I know that we all just want to get on with the treatment but as it's individually tailored to our own specific circumstances we have to wait for the experts to make the decisions. My best advice would be to try and immerse yourself in doing things that you enjoy so that you have less time to think about the 'what ifs' that are bound to be popping up in your head at the moment.

While you're waiting for replies it would be great if you could pop something about your diagnosis so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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Hi Sophiemay..I was diagnosed 6 months ago with net on my small bowel. I've had surgery 2 months ago and was recently told about cyst on my liver.However I met with the Net consultant last week who told me that they employ a watch and wait with my liver monitoring my hormone levels and scanning.I  was very anxious after being told about my liver but at least I now understand what way they are treating me. It was just last week that I received information about Net's as I had never heard of them.I recommend Macmillan for information and was given their leaflets at the consultation.....6 months after diagnosis. I understand your worry. It is hard when you don't know what is happening. If you know your consultant ring his / her secretary and ask for information. Hope this has been helpful. 

Rovau

Rovau

Thank u so much for replying and sharing your knowledge and information. It’s helped to know there’s someone out there that has experienced what I ve got and am going through. It was something I d never heard of and came as a complete shock. 

Had loads of scans on Monday and the team meet today, so should find out more when the nurse contacts me. 
Take care.