Hi, I'm new to the forum and this is my first post. I was diagnosed last April with neuroendocrine cancer of the colon which had metastasised to other abdominal organs and peritoneum. However, I've had 12 cycles of Folfox (finished December '21) and the disease has receded (tumours shrunk) - so not all bad. I feel so much better physically as the Folfox leaves my system but find myself more anxious in this state of limbo than I did before. I don't know what can come next. I've been told of possibles but all very vague. I don't know how long it's wise to plan for - and that's the question I dare not ask. I've been really positive so far - even through sepsis - and much of the time can face up to and accept the worst, so am bewildered by my own confusion at this stage. Does this chime with anyone? Any suggestions?
Hi and a very warm welcome to the online community
That's great to read that your tumours have shrunk and that you're feeling physically so much better.
I had a different type of cancer to you but I can empathise with wondering what happens now, will it return, etc. Personally I've carried on making plans because I know that if something happens I can always change them and I think it's important to have things to look forward to.
Hopefully others from this group will pop in and tell you how they've coped and what strategies work for them. While you're waiting for replies it would be great if you could pop something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
