Extrapulmonary small cell cancer diagnosis

Hi everyone,

I'm new here and this is my first post. My wife was recently diagnosed with extrapulmonary neuroendocrine small cell carcinoma, which presented in the breast, including one lymph node. It was described by her oncologist as localised, as there was no distant evidence of disease elsewhere. There are very few studies on this cancer as it is very rare, and it is also very aggressive. The cancer is treated in the same way as SCLC, and that is how my wife has been treated to date. She has had 4 cycles of chemotherapy (etoposide and carboplatin), and 25 concurrent sessions of radiotherapy (with an additional 5 booster sessions). She has recently finished this treatment and is now waiting on the follow-up PET scan in early March to assess the situation, with surgery as the most likely next step. I am just writing to see if there is anyone else here that has/had extrapulmonary small cell cancer that presented in the breast? There are support groups for SCLC and breast cancer, but I can't find anyone/any group that has experience of the above diagnosis. Because of this, my wife is finding it particularly difficult to cope with everyday living, as she feels no one understands what she is going through, and that she can't find and talk to someone with a similar diagnosis. I would love to hear from anyone that is familiar with the above diagnosis, as my wife now fears that the cancer is going to come back fast and hard.

Many thanks