I have been told today I have a 38mm NET tumour which has spread to surrounding lymph nodes and to four places in liver. This was an incidental finding and I’m so shocked as I don’t have any symptoms and feel fine. I’m being transferred from the hospital that diagnosed me to another hospital for treatment. All I can think about is my 6 year old rescue dog. It has taken me 2 years to make him feel safe and settled and the thought that he may lose me is unbearable. I lost my partner to a sudden death recently and with no other family or friends how will I cope. My partner always drove so now I have to contend with driving over an hour each way to hospital and leaving my dog for hours on end.
Your having such a hard time Where do you live? Can you get a local dog walker to check on your dog?
Thank you for replying. My dog is a rescue who has had a horrible life until I got him. It’s taken me 2 years so far to make him feel loved and secure but he is still wary of people and hates other dogs. I wouldn’t trust leaving him with anyone except my sister but she lives in Spain. If I have to have surgery she will fly over to look after him but in the meantime, although he doesn’t like me leaving him, I think he is better being left at home alone for a few hours. X
Ahh I understand how you feel. We had to take one of our dogs to out of hours vet on the Sunday before my lung surgery on the Wednesday. He had hurt his back. I wanted to postpone my surgery as I was so worried about him.
Oh I hope he will be OK and I wish you all the very best for your surgery. Who will look after your doggie when you’re in hospital? X
Oh gosh, I thought I'd written this! (although I don't have the worry of a dog) Well done for reaching out - I've not yet been able to articulate how I feel about my diagnosis. I hope you find help here, and perhaps we can connect a little more. X
Thank you. I’m in limbo at the moment. I’m waiting for the hospital to contact me to discuss what happens next. My mind is in over drive until I know how bad it is and how they propose to treat me. I read somewhere that once diagnosed the treatment should start within 2 weeks but not sure how reliable this info is. X
I was in the 'limbo state' and between hospitals, over Christmas and New Year - it really is the scariest time. I've since had one appointment at The Christie in Manchester, including treatment (Lanreotide injection) my second was due this week, but as I'm to be given a Gallium Scan next week, that has to change. It's a totally new way of life, and patiently waiting is also something to get used to (take something with you to read when you do get called in). None of this helps for your dog, I am sorry. And I'm lucky in that I do still have my husband, however he's living with his own stage 4 cancer. It's certainly not how we imagined retirement. Live your best life, whatever that looks like, and hopefully you'll get more clarity on that soon. X
Hi Stella, just an update for you. I was referred to Colchester Hospital who contacted me straight away by phone. Spoke to a lovely doctor who said the tumour in the ileum is Grade 1 and I have 10 tiny (less than 2mm) on my liver. They are sending me for a liver biopsy and then to UCH hospital in Euston for a Gallium scan. Providing these tests don’t show anything unusual he thinks my treatment will just be monthly Lanreotide injections which I can do at home. He said it was good I went to my GP when I did as I’ve caught this early. Hopefully I can fulfil my wish to outlive my 6 year old doggie. I feel tentatively optimistic. How are you? X
Good to hear you sounding more optimistic... 'tentative' is another word I understand. My primary is 7cm in my lung, they also believe this to be grade1, which is good news. However I had been to my doctors with a number of minor symptoms for years, but sadly it was not investigated or considered, until recently. Now my fear is that the Gallium Scan will flag up other secondaries. I just want to know though. I hope you get your Scan soon and that the magic Lanreotide keeps us both 'well' for many years to come.
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