Neuroendocrine tumour

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Hi, I was diagnosed with a neuroendocrine tumour in my gallbladder in December 2025. I believed I only had gallstones so it was a huge shock. 

I had to have numerous scans, a laparoscopy, surgery and now undergoing adjuvant chemotherapy. Cisplatin and etoposide. Infusion over 8 hours, then tablets twice daily for 2 days at home, every 3 weeks. I have had 3 and 3 to go. 

I'm wondering if anyone else has had the same as me. I've been told cancer has gone, and chemotherapy is an insurance policy. 

  • Hello  

    I am Brian, one of the Community Champions here on the online Community. I have just noticed your post has gone unanswered. I can't answer it myself as I have a different cancer, however by me replying your post will be "bumped up" to the top of the page and I hope seen and answered by other members of the group.

    . I've been told cancer has gone, and chemotherapy is an insurance policy. 

    I do hope this fact is true - and wish you well with the rest of the Chemotherapy.

    Best wishes - Brian.

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  • Hi millibob thank you for replying. Yes i have been told the surgery was successful and the chemo therapy is an insurance policy to ensure it stays that way.

    I look forward to hearing from anyone in this group who has same as me. 

    Take care

    Amanda 

  • I know this is a little late, I've only just joined the forum. I have a NET but in my colon, I've not had treatment yet but just wanted to reassure you that 2 other people I have known with different cancers both had treatment after surgery for the same reason you were told, the cancer was gone they were just doubling down to make sure and both went on to be cancer free.  

  • Hi thank you i truly hope you are right 

  • it’s not to late glad you came granitewave and hope you get your treatment soon and as i mentioned before my surgeon said that neuroendocrine tumours are extremely treatable just everyone hang on in there and keep smiling Heart️