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Hi I was in remission for just over 2 year until my Myeloma returned in April. My new treatment started late May, consisting of Carfilzomib Dexamethasone & Lenalidomide plus the usual infection inhibitors. I am coming to.the end of cycle 4 and...
Hi all, I’m new to this group. 18-24 months ago I was diagnosed with MGUS. Today I have severe peripheral neuropathy and both arms and hands feel like they are failing due to the pain and strange sensations. I have suffered with Barrett’s and have had...
Hello everyone, I am now going to start treatment to my light chain myeloma condition. Mid Fen I wI’ll receive my first sc injection of Daratumumab. I am still asymptomatic but with increasingly bad markers. I am expectant to receive the associated side...
Hi all. First posted on here 2 years ago when I got my Smouldeing Myeloma diagnosis. After hurting my back and been fobbed off by my GP for a month i finally went to AnE. 2 fractures, multiple legions and vertebrae damage. Not "just a pulled muscle...
Feeling overwhelmed with what's to be my future situation. Can't get my head around the thought of lengthy treatments which cause long-term side effects for an unknown amount of time in remission then start all over again? How much quality of life is...
Hi everyone i hope your all doing well , i was diagnosed in Oct and have finished 3 cycles of treatment . The tiredness and lack of taste are a bug bear but the treatment is going the right way so thats good .
As e 81 year old this is new to me It is good to see that you are not alone and that there are many others going through the same journey The biggest problem I have is the lack of energy a few days after treatment
Hi, I'm Stu and I was recently diagnosed with Multiple Myeloma. I am or was a platelet donor, I donated in January with no problem. In February I had a phone call from the blood donor centre saying my red blood cell count was a bit low, not low enough...
Hi everyone. This might sound an awfully silly question, but what does bone or bony pain feel like? I have been in remission for nearly six years now, thank the lord. But I am worried that I am getting shoulder pain that I do not recognise as muscular...
Hi Everyone. I was diagnosed with Myeloma in January 2020, following many years of being diagnosed with MGUS. I had five rounds on chemotherapy, followed by a stem call transplant in August 2020, where I was a hospital inpatient for around three weeks...
