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Newly diagnosed on Friday 13th. 65 year old female. I feel so scared, knots of cold fear in my gut. Have taken to my bed to hide away. Awaiting bone marrow biopsy Monday 23rd. I am not mentally strong enough, already struggle with depression....
Hi I am new to the group and I could really do with some advice on pain relief and where do we go for help. My dad was diagnosed with multiple myeloma last June, he is currently on a regime of BVD. He is suffering from horrible debilitating leg cramps...
My sister went through myeloma chemotherapy earlier this year, followed by an autologous stem cell transplant. She has now started lenalidomide as maintenance treatment. Her immune system is very low, and she’s been unwell for the past two months, from...
i am a 66-year-old male. I was under a doctor's care for MGUS for six years, monitoring my M protein spike numbers. The numbers met the treatment threshold for multiple myeloma in September 2025. I started treatment in November 2025. The plan for treatment...
Hello! new here, I’m on this trial and just wondering at others experience? My nurses and triage team are awful at getting back to me etc, I had a reaction to one of my meds 2 weeks ago, co-trimaxazol head to toe rash, took them 2 days, numerous phone...
Hi everyone, My husband was diagnosed with Myeloma in April 2024 and joined a trial and had 3 months of treatment at the end of last year. Following a few delays due to bed shortage and scheduling he finally had his mephalan yesterday and SCT will be...
Hi everyone, Recently diagnosed with POEMS disease (plasma cell infiltration greater than 10% in bone marrow). I have started DVrd chemo and will have autologous stem cell transplant in a few months. Has anyone else been diagnosed with POEMS? Apologies...
Haven’t logged in for a while as been adjusting to my weekly treatment days and abundance of pills. Feel I’ve now experienced most of the side effects, several at a time, but fortunately not all at once. I’m finding restless legs hard to deal with as...
Hello everyone. I’m new to this group. I am grateful for any advice. I am newly diagnosed MGUS with paraprotein 3G/l. I had my appt about this last Friday and they are concerned about some back pain I have so are sending me for an MRI next week. I’m having...
I am new here. My mum was diagnosed with myeloma in November and she has rare pulmonary and heart involvement which has reduced treatment options. She started treatment but it is very overwhelming how much support family has to ensure we get her to her...
