Hi New to the forum

Hi  Kingfisher,    welcome  to us on the Forum,   a  few on here with  various levels of blood cancers,   i am   male,  in remission,  and  just about 2 years post Stem cell transplant,   and    life could be worse!        after 3 treatments of  DVTD?    you are getting close to Stem celll  harvest planning,?      its   not too bad   a bit boring sitting there for  2-3 days,    i did 2 with enough harvest for  2 Stem cell transplants,      Fatigue is tough,    rest when your body tells you to,   i would sometimes go back to bed for 2 hours in the PM,    but most time  i was still active,   just a bit slower!     anything you would like to know,  please ask away,   you are not alone,    Kevin  AKA  vespa  

Hi kingfisher  and welcome across to this corner of the community.

I did put up a reply to your post and n the Nrw to Community area just before I realised you had posted here.

I don’t have Myeloma but I was diagnosed way back in 1999 at 43 with a very rare (8 in a million) incurable but treatable type T-Cell Low-Grade Non Hodgkin’s Lymphoma……. eventually reaching Stage 4a in late 2013 when a second, also rare fast growing type of T-Cell High-Grade Non Hodgkin’s Lymphoma was presenting….. so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well.…….

….. and more so in light of you mentioning that you are heading down the Stem Cell Transplant route (as you mentioned n your other post)

Are you having an Autologous Stem Cell Transplant using your own harvested Stem Cells or an Allograft Stem Cell Transplant using cells from a matched donor as there are distinct differences in the process.

I have had 2 Allograft Stem Cell Transplants June 2014 then Oct 2015.

Hi Vespa , i am waiting for the referal for Autologous stem cell transplant which brought me here looking for info . I have found a section to read on the treatment but what can i expect post transfusion .

Hi Kingfisher, welcome to the forum.

I am glad for you that the treatment is going well. Which treatment are you having, please? I am curious, as the loss of taste sounds a bit unusual (though nothing to worry about).

I had my first line of treatment in the first half of 2023. It's 2026, still in remission, and getting on with life (although fatigue still holds me back).

All the best! 

Hi   again,     just want to be OK  that you want my experiences,   "  warts and all"?   as it is not an easy journey,   but a  very worthwhile  journey,   before i respond in full to you,      i do not wish to " create  any fear,  only the realities       and remember every one of us is different       Kevin    

I got the lack of taste during the stem cell transplant. favourite things became like dust but it didn’t last forever and I’m enjoying everything right now