Hi I am new to the forum

Hi

I have Multiple Myeloma and I took suffer from tiredness.

I am 63.

I take naps in the afternoon usually.

I am on steroids 2 days a week and usually get very little when on Dexamethasone

Dave

Hi. I am no expert but at 81 you have earned the right to be tired.      The.  Myleoma treatment does make you fatigued.   When I was on treatment for.  M. M.   I would go to bed for 1-3 hours most days to rest.   As my overnight sleeps were not great     Lack of energy is also a side effect and your red blood counts will be down.       Are you having weekly blood tests ?

you are never alone on this forum.   Lots of great advice.   Kevin 

Hi. Dave I have. M. M.  And now 21 months post stem cell transplant.   I also still get tired.     The dexamethasone is a potent stimulant used to send me a bit crazy   Verbal more than normal. Less tolerant!     It does get better!    I am male 68. 66 when diagnosed.   Now in a good place       Kevin. 

Hi 

I am new to forum also

I was diagnosed march 2022 with this

i had chemotherapy for @ a year then stem cell transplant in Kings London and now in remission for @ 2 years take Lenelomide to keep everything in checks and get consultation my drugs are issued every 3 months so consultations not so frequent as c before as condition is in check

So my point is don’t lose hope as this can be lived with 

Best of luck

Similar. 73 yrs old. 8th week. Isatuximab, Velcade dexamethazone and lena

good results after six weeks. Dec down to 5 tablets two days. Rough first weeks but not too bad. Usual tiredness. Numbness in left hand and pins and needles in right are a part but am trying exercise balls,recommended . Hope they work.not sure of the future schedule. ISA also down to fortnightly. Like everyone says just have to do it!

great hearing other stories 

I think just rest whenever you feel tired. My energies seem to be getting better as I got first scheduled results which were good 

hope all goes well 

rob

How was the transplant?

I don't think they will give me it. 73. Not sure how long I will be treated but good results after 6 weeks.

rob

I hear I might be able to get home injection machine soon. Anyone had one?

• I was 73 when I got the transplant. 

How was it?