Hello. New member here

Hi and welcome to the forum.

When I developed peripheral neuropathy in the soles of my feet, my consultant and my clinical nurse both independently suggested vitamin B6. This has worked for me.

However,  Chat-GPT says "Doctors often suggest a B-complex formulation with:

B₁ (thiamine) — 100 mg

B₆ (pyridoxine) — 10–25 mg

B₁₂ (methylcobalamin or cyanocobalamin) — 500–1000 µg"

By the way, more is not always better: huge doses of B6 can actually makes things worse.

Hi, I have had peripheral neuropathy in my legs and feet since my stem cell transplant 2 years ago. Im on the highest dose of pregablin and vitamin B6 tablets 3 times a day.  To be honest, nothing really has worked for me and my consultant says sometimes the feeling never returns so I just have to put up with it.  Its a small price to pay for being in remission tho..  Everyone is different tho.  We are always here to help if we can.  

Hi.  I am 18 months post SCT. Also 68. Male with neuropathy.   I take Pregablin.   Morning. Afternoon and late evening 2-3 hours before bedtime.    It can be very painful and  consuming with lack of sleep.     I find if I can keep my mind occupied I don’t feel it as much.    Gets worse after 3-4 pm.     Consultant says it’s from the treatment for the MM. of the DVTB Cycles      I put up with it the best I can      Kevin 

Thanks  - I will take a look into B complex 

Thank you. Are you able to say what  dosage you are on?  I am in the process of asking my GP to up the dose I am on.  I agree , PN is a small price to pay for being in remission, but when I am pacing the cold kitchen floor at 3 or 4 in the morning because I can't sleep, its so bad. Then I'm not so sure! 

Thanks for your reply Kevin. Mine always seem to be worse at night. I have been on Pregabalin for a couple of months now so I am hoping for an improvement

Nigel 

Oh i really feel for you.  When I go out i have to hold on to my husband as I am not very good on my feet as they are totally numb up to my calves and I feel very unstable.  I am on 600 mg of Pregablin, 300mg in the morning then again in the evening.  I take one vitamin B 12 tablet 4 times a day.  Ive been on these for 18 months now. I don't have pain but have quite bad cramps in my toes and calf muscles.  I sometimes worry I  have been taking the Pregablin for so long but  worry what my neuropathy would be like without it.  I hope this helps and hope you soon get some relief.  Take care 

Hi i have peripheral neuropathy which at first was very painful.My consultant sent me for reflexology and acupuncture 6 sessions of each and also a procedure called tapping which is a bit new world but really helpful to relax and get you off to sleep .My condition has improved greatly and also a foot and leg massage from my wife helped aswell   .

Thank you for replying. My GP has started me on 100mg pregabalin (50mg in morning and 50mg evening). I have asked her to up the dosage, but cannot get an appointment , even a telephone one, till end of November.   I just feel so worn out when I don't get a good nights sleep because of it. 

I hope your cramps ease, Bunky. and again I do appreciate your reply. 

Hi and thanks for replying. I have tried acupuncture before for another issue, and it did no good at all. Perhaps I should give it a try for peripheral neuropathy. I do try to massage my own feet and calves before bed.  I shall certainly investigate tapping. Not heard of it,