Hi Everyone. I was diagnosed with Myeloma in January 2020, following many years of being diagnosed with MGUS. I had five rounds on chemotherapy, followed by a stem call transplant in August 2020, where I was a hospital inpatient for around three weeks. Since then, on my regular three monthly follow up appointments ( blood tests done about 2 weeks previously) all is well and I am 'in remission'. I am 68 years old by the way.
My main issue since has been peripheral neuropathy, particularly in my feet and lower legs, which causes me to have bad nights sleep. Almost like restless leg syndrome I think. My GP has put me on Gabapentin, which didn't work too well, and now for the last two months, pregabalin, which really has made no improvement to the nerve pain. Does anyone have any suggestions, or how they may have overcome this? I'm not sure what else to say at the moment, and I hope I haven't said too much here.
Hi, I have had peripheral neuropathy in my legs and feet since my stem cell transplant 2 years ago. Im on the highest dose of pregablin and vitamin B6 tablets 3 times a day. To be honest, nothing really has worked for me and my consultant says sometimes the feeling never returns so I just have to put up with it. Its a small price to pay for being in remission tho.
. Everyone is different tho. We are always here to help if we can.
