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Hi I’m new to the group. I’m currently on cycle 3 of VDT treatment. Looking to have my SCT early next year.
I was diagnosed with Myeloma after numerous blood tests and biopsy but so far no medication required. Struggling a bit with fatigue and neck pain which I’m assured is not Myeloma related. Most worried by the not knowing when or what is going to be affected...
Half way through 4th course of chemo and recommended for stem cell transplant after 6th. I have to make a decision to go for it or not. Can any one offer thoughts from their experience?
Hi everyone, Cant believe I’m writing here. Feb 2019 my partner was diagnosed with low risk MGUS with paraprotein at 19. He has had blood tests every 3mths which have led us to his last results that showed paraprotein at 28. From what I have checked...
My dad was diagnosed with multiple myeloma a year ago after being rushed into hospital with pneumonia.He was admitted to hospital a month ago an sent home after a week we only found out he had sepsis on reading his discharge notes He has been in a lot...
Hello, it is difficult for me to speak about this outside of my home because I am terribly concerned that my discussion would upset someone Just to chat would be great. Thank you
Hello People, I feel like a bit of a gatecrasher here as I've not had a diagnosis but a couple of anomalies were flagged up a few weeks ago during a blood test and my GP called to tell me he was going to request an urgent Haematologist appointment....
I am 57 and currently on my 5th cycle of chemo (Lenalidomide) which is going really well and hasn’t caused me any significant problems to date, likely I will have to consider a SCT soon but having one is something that really worries me. I had a bad time...
Hi I'm new this, my husband has stage 3 myeloma and is receiving blood transfusions every other week ,done know how long this can continue ,all treatment has stopped , I am very frustrated as I dont know what the next step is.
Just starting my second week of treatment, already had a allergic reaction to allopurinol, not pleasant experience.
