Myelofibrosis- Hi my name is Christine and my dear husband has this disease.

Hi

I lost my 14 year old daughter 14 years ago due to leukaemia,   It was very difficult but we talked about everything even what She wanted after her death. I promised her that I would do all that I could do for her while she was alive but not after her death.

I asked her what I should do after she died, she said that I could be sad for a little then I should get on with it.

I have told my children 11. 13 and 18 about my condition, they had a little cry and that was ok

It is okay for people to be a little upset but more important to appreciate you while you are still alive

Hi Christine MONTINHO, I just noticed your post. You may want to join and post in our new group that covers rare blood cancers like Myelofibrois - just follow this ling MDS/MPN/ET/PV/myelofibrosis (MF)