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Hi , I'm Debbie, aged 63 and was diagnosed with Myeloma in 2019. I had a stem cell transplant in April 2021. I'm on my 26th cycle of Lenalidomide maintenance. I'm doing really well but the general fatigue is getting worse. Does anyone know whether this...
Hi everyone. You can call me Algorithm. I am 49yo, male, and I live in the north-east of England. So a few weeks ago I started having a very bad back-pain not triggered by any particular activity that doesn't go away. I went to my who GP prescribed...
Hi all, Have been diagnosed and waiting on mri and starting of treatment. I am beginning to retain fluid, weight increase, blood pressure increase and breathing issues. Should I wait for my next appointment on the 20th or speak to someone on the team...
Hi all, I have always thought of myself as a good eater with good mixtures of foods, good and yes bad. Wondering if anyone would have any advise on foods for this horrid disease? Thank you.
Hi all, Diagnosed 2 weeks ago with multi myeloma and had it confirmed today. Still awaiting scan but treatment starting in 2.5 weeks. Doctor and staff were really good and understanding and despite being anxious made me feel a bit more at ease....
Hi I am a 60 year old female. I hope you guys don't mind me being on here with not yet having been diagnosed. I had a myeloma blood test about a year ago on the basis I was getting a lot of rib pain. I know the M protein is present in people with...
Hi, I'm new to the group. I was recently diagnosed with Myeloma which has caused me to have a spinal cord compression. It was a shock. Will be great to hear from others.
Hi everyone . I had a stem cell transplant first week in April . Happy to say I'm recovering really well at home . I have lost most of my hair as I was expecting too but so far I see no sign of any new growth . I was wondering how long other people...
My dad was diagnosed on Thursday and started chemo yesterday. We know so little about what is going on, and his healthcare team is making it harder by constantly telling him how rare his cancer is. I'm incredibly grateful that although he's 69, he's in...
I have myeloma I'm 55 years old. I went through chemotherapy treatment from march last year, then had stem cell transplant last September. I would like to chat to people going through myeloma as some days I struggle with diagnosis. Most of time I'm very...
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