My dad was diagnosed on Thursday and started chemo yesterday. We know so little about what is going on, and his healthcare team is making it harder by constantly telling him how rare his cancer is. I'm incredibly grateful that although he's 69, he's in such good health that they're able to do the aggressive chemo usually reserved for younger patients, and that they had a bed for him and could start right away.
I live in the UK but my family is in Canada, so being far away has been very hard. I talk to my dad daily, I know he's trying to stay positive but he's scared and anxious. I love my dad so much. He was supposed to live to be 100! I'm the youngest in my family, and my dad and I may not always have been the closest, but we 'get' each other because we're so much alike. I'm completely heartbroken.
Hi Dominique and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about your dad’s diagnosis…… and yes, this will be hard for you being so far away from him
I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a very rare (also incurable) but treatable type of Non Hodgkin’s Lymphoma (Stage 4 in late 2013) so although my Blood Cancer ‘type’ is rather different I do appreciate the some of the challenges of this journey well but not the caring side.
Let’s look for the group members to pick up on your post. There are a number of active group members at the moment so why not click on the main ‘Myeloma Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat where you will find one of team there to help you out. We also have our Ask an Expert section but do allow a few working days for a reply.
For good information do check out Myeloma UK who produce very good information they also have a Support Line on 0800 980 3332
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and can be a great help to you.
Always around to help more or just to chat ((hugs))
