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Hi I was diagnosed with multiple myeloma in February this year and finished my chemo treatment in June. I have just had my stem cell harvest and am now awaiting a date for my transplant. During chemo I only had slight tingling in my feet but since finishing...
Hi I am new to this group and wanted to say hello I was diagnosed with smouldering myeloma in December last year and really not sure of where I am at !! consultants nurses everyone all so so lovely but to be honest I feel like a bit of a fraud because...
Hello 3weeks ago my mum was told her blood count from the week before was 81 (8.1) so I knew it was going to of been even lower as it was a week later so the next Wednesday had bloods done again and was 62, two days later had 2 litres of blood repeated...
Hi. Recently diagnosed and first chemo cycle coming in August 23 Can anyone share if they attended all appointments alone. And able to drive Ito and back home again. My journey wound be 30 minutes each way. Also I was due with extended family to visit...
Not sure how to tell our own kids
I was diagnosed with smouldering myeloma in November 2021 and this was a great surprise to myself and family and I felt my world had ended !. I also have back problems and Type 2 diabetes. I have 3 monthly check ups for blood results .. these have now...
Hi Can you claim for a refund on dental treatment as MM is classed as terminal due to no cure. Many months ago I was informed by my hospital I jeered a check up prior to my Zometa infusion. My check up revealed I needed attention to four teeth but...
Hi I was diagnosed with Myeloma in September 2022 , I have currently had 16 weeks of chemo and had stem cells taken last week and awaiting transplant . I’m very anxious about the next stage .
My Father is 84 and has dementia is deteriorating rapidly . His myeloma is stage 4 . He had 13 cycles radiotherapy 3 years ago and has recently had five sessions of radiotherapy to his head . My Sister and I must decide if he goes through chemotherapy...
Hi, I’m new here, diagnosed with multiple myeloma in October 2022 out of the blue after starting to fall over! I’d be interested to hear from anyone newly diagnosed or experience of autologous stem cell transplant which I’m waiting for. I’m 62, mom of...
