Hi
I am new to this group and wanted to say hello 
I was diagnosed with smouldering myeloma in December last year and really not sure of where I am at !!
consultants nurses everyone all so so lovely but to be honest I feel like a bit of a fraud because I am not yet at a stage for treatment and if I am honest look fairly healthy apart from the absolute constant fatigue!
So it is a hidden illness for me !
on the other hand I have severe spinal stenosis and 2 bulging discs and THE MOST horrific nerve pain down my right leg and that is the total focus of my family and friends with hardly a mention of my cancer diagnosis
sorry for the rant 
thanks for taking the time to read x
Hi. LettyLaw No rant at all. To be honest it sounds awful and painful. I have been recently diagnosed with MM. and I am NOT. a health care professional. Only same as you a patient. 
First chemo next week. The waiting game but feeling very positive. Like you the fatigue gets me Particularly in the afternoon. I don’t fight it. Go to bed. Lie down and take-3 hours rest. I guess you possibly had steroids?? They helped me as I have lesions on hip and spine So can be painful. For a guy that used to travel the world for work. Now I struggle tget to the end of the street and back. Some great people on here will I guess respond. Better than. I. But we all appreciate you being here and sharing. Humour helps me a lot 
Hi LettyLaw and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about your diagnosis.
I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a very rare (also incurable) but treatable type of Non Hodgkin’s Lymphoma (Stage 4 in late 2013) so although my Blood Cancer ‘type’ is rather different I do appreciate the challenges of living with an incurable blood cancer.
Never ever feel that you are a fraud...... I could have thought this way back at the start of my journey as it took about 14 years before I needed full on treatment but this is a long game so getting your support base sorted now helps you in the future.
I see that Vespa has picked up on your post so a good start right there.
Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat where you will find one of team there to help you out. We also have our Ask an Expert section but do allow a few working days for a reply.
For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups, the one I attend does have a few folks with Myeloma in it so worth checking.
Always around to help more or just to chat.
