I was diagnosed with smouldering myeloma in November 2021 and this was a great surprise to myself and family and I felt my world had ended !. I also have back problems and Type 2 diabetes.
I have 3 monthly check ups for blood results .. these have now been moved to 4 months presumably because the hospital is under severe pressures.
Obviously at each check up when showing no worsening it is a huge relief , yet as time passes and the next test becomes due there is a lot of anxiety as its a completely unknown result until I receive the results.
Unfortunately the other 2 problem mentioned both also can give pins and needles and peripheral nerve damage and during these last 3 months these problems and others have increased ... I always remain optimstic but feel it may be wasting local GP time if I go to our local surgery complains of twinges and pains as they cannot really say which of my problems are causing them .
So the unknown plays on ones mind , worries increase , the what if factor plays large in thoughts and I am writing this as an introduction to ask if others feel the same with their private thoughts and concerns and like me hold them privately to themselves trying to deal with this horrible situation keeping their thoughts to themselves.
If you do it would be great to share and talk on this site .
Thank you
Russet
