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Hello everyone. I was diagnosed with multiple myeloma in 2014. I glad to be part of this group.
Hi,I had my SCT in August 22 and all went well. I'm on lenelomide maintenance which is keeping everything at bay however the last month I'm getting a lot of fatigue.Ive been of work for a month but I'm due back on Monday.The way I feel at the moment there...
Hi all , I have tried to use this before without much success.Hopefully I am doing it right this time.I was diagnosed with mm last Sept.I have since undergone chemo and have had stem cell harvest about 5 weeks ago.I recieved a letter on Friday to have...
Hi, I've recently been told I may be suffering from cutaneous t cell lymphoma. Just last week as part of trying to obtain a full diagnosis I was asked to undergo a CT scan. I was subsequently called into the hospital 5 days later to be told it has shown...
Hi has anyone had reactions to the maintenance drug Lenodomide ? I have been reacting with very large Hive spots, vomiting & my lips feeling swollen tongue tingly like you have been to the dentist. my doses changed I am now on 2.5mg the lowest no...
One day I’m getting out of bed for work 15 days later I’m starting intensive Chemo which will be followed up by stem cell transplant. I have so much support but feel very alone. I don’t feel happy or sad and will ensure I stay positive. I have two parts...
Hi there. I was diagnosed with MGUS 3.5 years ago and been having annual blood tests. On May 1st I went to get out of bed and felt a crack in my back and fainted. Ended up in hospital with a fracture and they found many lesions all over my body. had a...
Hi, I'm a newbie to this forum, with a recent Myeloma diagnosis, and it would be great to hear from others in the same position and get some advice. At the beginning of 2023, I went to my GP with pain at the very top of my neck/base of my skull. At...
As suggested, I am saying hello! I was diagnosed with myeloma well over a year ago. It was traumatic at first, and I still get depressed occasionally, but most of the time I am in good spirits. I had my first line of chemotherapy last year, but did...
Hi I'm new to this forum, my partner has recently been diagnosed with light chain myeloma, hoping to get some support to support him
