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I was diagnosed with multiple myeloma almost 12 months ago now and I’m just about to complete my 6th cycle of chemotherapy and I’ve had a stem cell transplant. Just joined group so wanted to say Hi
Hi all I have recently being diagnosed with myeloma. I won’t bore everyone with my full storey but basically was initially diagnosed with a sarcoma of the sternum and following a sternum biopsy turns out it’s myeloma. I have been advised by my consultant...
Hi all, pleased to have joined your forum. Briefly I've been on Lenalidomide for past 3 years and its efficacy is dwindling. So have been recommended to move onto Daratumumam, Bortezomib (Velcade) and Dexamethasone ie (DBD). My concern is that when I...
My Wife has had MM for about 10 years. Revlimid and Dex to lower numbers. A successful stem cell transplant from own cells After Revlimid failed 2 years ago, Pomylist also failed quickly, then moved to Darzalex FastPro, which worked great for 2...
Hi all, I was doing really well, I had 6 cycles of treatment and then a date for admittance for my SCT. Unfortunately on the date i was due to be admitted i received a phone call from my consultant cancelling my attendance stating that there was too much...
Hi, I’m new here and hoping someone can clarify something regarding a positive Bence Jones test. Has anyone here had a positive Bence Jones test and still been diagnosed with MGUS or smouldering MGUS rather than full Myeloma? I was diagnosed with MGUS...
Hi just wondering how people deal with back pain caused by multiple myeloma diagnosed 4 months ago
My hubby has finally been told he has MM not prostate/mets to bone after 15 months so wrong treatment all thst time! To say I am angry, frustrated, annoyed by the Consultant in Urology is an understatement. All along I kept saying that he was not...
Hi everyone just new to this site trying to navigate my way through.
Hi all – is there anyone else here with Multiple Myeloma? If so, have you anything positive to say about your progress or treatment? 4 th Feb 2023: Went to my GP with a very sore ribcage, telling him repeatedly ‘it feels like a fractured or broken rib...
