Hi all ,
I have tried to use this before without much success.Hopefully I am doing it right this time.I was diagnosed with mm last Sept.I have since undergone chemo and have had stem cell harvest about 5 weeks ago.I recieved a letter on Friday to have a picc line inserted on 3 June.Does this mean I will be going in for transplant shortly after.I must admit I feel confused and scared, however I know it has to be done.Has anyone else gone through this.regards , Mal
Hi Mal, yes I had SS transplant last September and I had my picc line about 5 days before I went in. The process is painless so don't worry. The transplant is painless too. Its hard going for about 3 weeks I will be honest tho but it's a means to an end and every day you get stronger. I'm in remission now and feel great so don't worry. We are always here for you. Strength in numbers! It is quite daunting but please don't be scared. The hospital staff are amazing, and they know what they are doing. You will get thru it!! Take care.
Hi Mal, glad you reached out again, a few of us have been through this, honest great news you have had the Stem cell harvest!! PICC line, i was a bit daunted, but to be honest, i was in hospital and had the PICC line the day before the Stem cell transplant, the team that did it, in my hospital bed were to be honest Awesome, so informative, professional it was like a mini operation, one did the hand over prep one did the procedure, then taped me up, i also was taken down to have an x ray, to make sure 100% the line is where it should be, and it was, the PICC LINE was used for the SCT and for all medications post SCT which were numerous has i did catch a stomach bug and had to have antibiotics and platelets transfusions in the PICC line, it also makes it so much easier for the blood test nurses in the morning to catch some blood, so worth it for the ease of the shear amount of things you will/may need, may i add, 100% painless also, i did look at the viewing monitor mainly for the team, and the one at the foot of the bed, says " Look at me Kevin" please do be scared of the process Mal all for your benefit and trust me, i am now 100 + days post stem cell and feel bloody great ! compared to what i was like 9 months ago, i finish my last cycle next week and then some bone support work to come, i am walking very well, driving, wash the car, cut the grass all at a slighty slower pace, walk the dog ( thats new ) i know its a long message my friend, but we are all here for you, and it is worth the effort, please visit the SCT page at macmillan also, Best wishes Kevin AKA Vespa
Hi , Kevin , thanks for the info and support , it really helps ,I will keep in touch if thats okay,regards ,Mal
Hi Mel Betterdays and a warm welcome to this little corner of the Community…… I have a totally different type of blood cancer but I have been through 2 Allo (donor) Stem Cell Transplants.
You will get some great support from the amazing members in this group but it would also be worth checking out our dedicated Stem Cell Transplant support group where folks from different blood cancers support each other in the SCT rollercoaster.
Hi and thanks for the support , it really helps,regards , Mal
Hi Mal , Cakie here (Sue) I am 68 have MM and had a SCT April 2023. I'm in remission now which is great !
I really can understand how you feel .It is a frightening and confusing time .Life turns upside down and sometimes I felt my life was out of control .Its not a nice feeling .
I can tell you that the insertion of the PIC line is not painful .Put in under local anaesthetic. The staff that do this talked me through every stage .You will see the benefit of it when you have the SCT.
Can you talk to one of your team next week ? They will most likely be able to tell you the anticipated date of admission for SCT .
SCT is not a walk in the park but it gets the job done! Main thing for me was to keep talking to the staff and let them know how you are feeling .They are so good at solving problems no matter how small . Good luck and keep in touch .Sue
Cakie
Hi Sue , thankyou ,I know nobody can do anything about it , but its playing on my mind 3% don't make it.regards ,Mal
Hi Mal , sending you hugs and positive thoghts please remember this group is very supportive .
Keep talking , Macmillan and Maggies offer excellent confidentiality support as well as your team at the hospital .Reach out to them no problem is to small xx Sue
Cakie
Hi. I had the Hickman line inserted the day before they harvested my cells in April. It's a bit of a nuisance when showering but it has lots of benefits with taking blood. Harvesting cells etc. I am scheduled for the SCT ray July no specific date given, but as I keep saying I'm in the Spanish health system so I leave the staff to do what they are very professional about. I am sometimes left in the dark a bit but have become used with that.
They have earned my trust and I just let them get on with it. I don't know why I have the Hickman line. Maybe it's a national thing, but on 2 occasions I have visited the local health centre with possible infection of the entry area. This has been dealt with on both occasions without fuss and with 100% results.
Good luck, don't worry. Think positive and start planning your remission time
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