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I had my appointment today with the consultant, he said my blood protein level was 26 down from 29 last time but I forgot to ask him at what protein level do they consider starting treatment, I have no symptoms except for SFN but have had that for over...
What can you eat when everything taste like dust and how long will this feeling last. I had great energy it’s gone - apologies to those looking for an uplifting post. I just want some good advice. Thanks
I have smouldering myeloma. Would anyone share what symptoms begin to present themselves, from experience?
Not sure where to start but I guess I am touching base with all you MM folk. It's Friday night and I am burnt out. I recently went to a local charity to see what help I could get and the woman made it clear I haven't had any since I was diagnosed back...
My mum has recently had a stem cell transplant. We have been so focussed on getting to this point that we haven’t thought about life going forward. She is now two weeks post transplant and I’m scared for the future. Can anyone tell me their experience...
Currently struggling with very heavy fatigue. Or is it? I am on 2 years since diagnosis , treatment of chemo and SCT 16 months ago. Currently on Len and anti viral. I don’t feel any different on my week off len. i am writing this after two days of 15...
Started first ever cycle of DVTD on 12/08, which I thought went well. Unfortunately I then picked up an infection, which they cannot source, and have been in hospital for the last 6 days. Still trying to get 48 hrs of normal temperatures before I can...
Hi everyone, My wonderful father has just been diagnosed with myeloma. He is the fittest and strongest 66 year old so it's a huge shock to us all. I live 300 miles away so not going to see him until this weekend. I've had the news for about 5 days...
Just on my first week of treatment and my sleep pattern is awful. 2 hr naps throughout the night. About an hour in the afternoon. The nighttime is driving me mad, so it’s a vicious circle. Any help other than a knock to the head
Hi there I would like to ask about getting infections I am just over a year post stem cell transplant But I have had 2 bad chest infections meaning I had to be hospitalised one in April then another one in July I am very careful of going into crowds...
