Hi to all Vespa
i am now 17-18 months post Stem cell transplant, after 2 more cycles of DVTD i went onto Lenolidamide, after 3 cycles and a bad skin reaction, itch rash, the dose was reduced from 10 mg to 5 mg, this helped, but became intolerable again, so with guidance from haematologist i came off Lenolidamide, skin has cleared up, recent blood results are still good, i wonder if any other MM patients have gone through this, and how far down the line are you with no Lenolidamide,
We did discuss the second line of treatment, but only when the MM relapses, and the new approved combination of BVD.
BVD combines belantamab mafodotin (Blenrep®), bortezomib (Velcade®) and dexamethasone and is aimed at people who have received one previous line of treatment only, including lenalidomide (Revlimid®).
i feel good, a bit of fatigue with the high temperatures in the UK recently but who isn't ?
Kevin AKA Vespa
Hi Kevin , Sue here . I'm now 2years 3 months post SCT .
I'm glad to here you are doing well but sorry to read about your problems with Lenolithamide . I had a severe intolerance to this drug .My liver ( according to the team ) was in chaos and the skin rash was i tolerable . I with the help of my consultant made the decision to withdraw the drug and revisit alternative medication when the day comes that I need treatment again .
I'm well at the moment , like you with fatigue days but that's OK . My skin is still takes an age to heal I'd I get an insect bite and is super sensitive and tricky to manage .My local pharmacist has been a great help with this more so than GP or Haemotology.
Stay well and enjoy tge summer .Sue
Cakie
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