I found myself back on this forum after a decade since my dad was first diagnosed with multiple myeloma. I saw how many people are posting about being newly diagnosed and the fear and uncertainty. This disease is tricky and there is a spectrum of responses to drugs. Some patients do really well and some unfortunately don’t. Those that do well move on in life and hardly go back to post on these forums - so I didn’t want this to get lost on everyone. I know you are afraid right now but there are a lot of people living with myeloma and absolutely normal and beautiful life. Treatments are hard but they can work quite well and you really move on and forget about them. My dad still has does his check ups every 3 months which has become a routine. Things may fluctuate a bit but largely kept at bay so he went to have three grand children, visit Paris, build a house and teach math all which were unthinkable when he was doing his transplant 10 years ago. I am fully aware this is not always the outcome but it is an outcome too
Hi again MrsD87 day 100 post SCT is one of the many milestones we all have to pass on this journey. Although I have/had 2 different types of blood cancers (2 very rare T-Cell Non Hodgkin’s Lymphomas) I am now 9.5 years out from my second Allo (donor) SCTs, I turn 70 at the end of this year and I continuing to live a great life.
As you navigate the post SCT world you may find this old thread in our Stem Cell Transplant group helpful:
