Hi All
i relapsed 2yrs after my 2nd Stem Cell Transplant I have high risk Multiple Myeloma I was offered to go on a clinical trial it is a phase1 trial study. I started on 27th May it is a immunotherapy drug that will target 3 parts of the myeloma it doesn’t have a name at the moment it is called a Trispecific Trial drug. I also have another infusion of imuglugoblins to help with my immune system every 4 weeks. So far so good I am monitored weekly, I am called by research nurse every other day & I have contact numbers to go through to my team straight away. I do admit I was very scared & anxious beforehand I think it is the unknown but my research team are brilliant answering all my questions & worries.
After 2 weeks I got good results that my light chains have started dropping I start my 2nd cycle on 26th June I am hoping my light chains go down further. I will post to let you all know how it’s going.
I am now very happy I have done this not just for me but for everyone who has MM it can help. If you are offered a trial drug please consider it.
Take care & stay positive x
jacquie
