Hi All
i relapsed 2yrs after my 2nd Stem Cell Transplant I have high risk Multiple Myeloma I was offered to go on a clinical trial it is a phase1 trial study. I started on 27th May it is a immunotherapy drug that will target 3 parts of the myeloma it doesn’t have a name at the moment it is called a Trispecific Trial drug. I also have another infusion of imuglugoblins to help with my immune system every 4 weeks. So far so good I am monitored weekly, I am called by research nurse every other day & I have contact numbers to go through to my team straight away. I do admit I was very scared & anxious beforehand I think it is the unknown but my research team are brilliant answering all my questions & worries.
After 2 weeks I got good results that my light chains have started dropping I start my 2nd cycle on 26th June I am hoping my light chains go down further. I will post to let you all know how it’s going.
I am now very happy I have done this not just for me but for everyone who has MM it can help. If you are offered a trial drug please consider it.
Take care & stay positive x
jacquie
I recieved my light chain counts & I am now back in full remission they are the lowest they have been this is after one cycle on the trial study. Absolutely over the moon 2nd cycle delayed one week
ue to low neutrophils & low Platletts which could be due to a virus I had. I haven’t had many side effects just change in taste buds I cannot taste foods or very faint taste ?? I have had skin peelg from my hands & now my feet ?? My neuropathy has been painful so taking a bit more pain relief otherwise I feel fine so far Back at hospital on 3rd for 2nd cycle & on the 8th for imogulobin transfusion.
Take care
jacquie
